Scottish Paediatric & Adult Haemoglobinopathies Network
The Scottish Paediatric and Adult Haemoglobinopathies Network was established in April 2011 to strengthen and develop specialist services for children and adults diagnosed with a haemoglobinopathy condition.
Haemoglobinopathy is a term used to describe a group of conditions where the production of haemoglobin (the oxygen carrying protein in red blood cells) is either abnormal or inadequate. These are inherited diseases and include Sickle Cell Disease (SCD) and Thalassaemia. These conditions are usually diagnosed early in life. Treatments (for example regular blood transfusions, medications) will vary according to the disease and the presence of complications.
The network will support services in improving standards of clinical care of adults and children through the establishment of continuous quality improvement systems and process. Priorities for the Network are to:
- Develop clinical pathways linked to the national newborn screening programme
- Develop care pathway for children and adults
- Develop national guidelines, protocols and policies for the treatment of haemoglobinopathies and address gaps in service provision
- Develop a programme of training for healthcare professionals
- Develop a programme of education for patients and carers, many of whom will not have English as their first language
Contact details:
Dr Elizabeth Chalmers, Lead Clinician
Mrs Laura Craig, Network Coordinator
Service contact address:
Yorkhill Network Office
Queen Mother's Hospital
Dalnair Street
Glasgow
G3 8SJ
National Services Division contacts:
To contact members of NSD staff, please visit our staff contacts page.
Catriona Johnson, Programme Manager
Louise Wilson, Assistant Programme Manager
Hannah Cornish, Programme Support Officer
