NSD manages four risk-sharing arrangements on behalf of NHS Boards:
This risk share scheme provides pooled funding for the provision of blood clotting conentrates for people with haemophilia and thrombophilia through the six haemophilia centres in Aberdeen, Dundee, Edinburgh, Glasgow, Inverness and the Royal Hospital for Sick Children, Glasgow.
National Protocols and Guidelines for Haemophilia Centres
In Scotland factor concentrates for haemophiliacs who use prophylaxis and /or home treatment can be delivered directly to the patient. The principal aim of the service is to provide a sensitive and personal home delivery service to haemophilia patients and their families. To improve the quality of care to patients at home who require to administer clotting factor on a regular basis thus enabling these patients and their families to lead as normal and active lives as possible.
The aim of the protocols are:
- To set national agreed terms of reference in relation to home delivery within all haemophilia centres.
- To be used as a tool to enhance home delivery service within a haemophilia centre
The National Protocols and Guidelines can be accessed through the following link
The spend in 2015/16 on recombinant coagulate factor concentrates and orphan drugs is reported below.
|NHS Board||Orphan Drug Usage 2015/16 (£)||Recombinant & Commercial Factor Concentrates Usage 2015/16 (£)|
|Ayrshire & Arran||780,929||943,841|
|Dumfries & Galloway||186,693||454,437|
|Greater Glasgow & Clyde||2,904,154||6,834,071|
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NHS Boards pool funding nationally to meet the costs of selected very high cost drugs for patients in Scotland.
NHS Boards pool funding nationally to meet the costs of care and treatment for patients with learning disability who need medium secure care.
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Further information on specialised services in the UK is available in the following section of the NSD website: